The bipartisan support for the groundbreaking national reform

The 56-year-old, who was born with arthrogryposis, which severely affects her mobility, has been fighting a losing battle against red tape.

Her battle comes as Geelong yesterday missed out on being named a launch site for the National Disability Insurance Scheme.

The scheme promises extra money for people such as Mrs Foreman and, until yesterday, it was thought Geelong was in the box seat to be included in its launch.

She said it was a bitter blow for the region's 5000 people with a disability.

The bipartisan support for the groundbreaking national reform disintegrated yesterday, with the state and federal governments failing to reach agreement over funding, leaving South Australia, Tasmania and the ACT as the only launch sites.

"It is disappointing but you have to think on the positive side, at least there is eventually going to be an NDIS, which is better than what we've got now," Mrs Foreman said.

She is one of many people who don't automatically qualify for disability funding, making something as simple as getting an $800 pair of shoes a nightmare something she hoped the NDIS would change.

"There's just so much red tape," she said.

"There's a big gap between what the government gives you and the equipment you need."

"It's the little things that people take for granted, like being able to take a shower when I want one, that affects the whole of your life."

Chief of Geelong disability support service Karingal, Daryl Starkey, said there were many people in the region, just like Mrs Foreman, who don't currently receive funding or are underfunded for their disability, who would have benefited from the NDIS trial.

"We are very disappointed for people with a disability in the Barwon region and we just hope the door is still open because we are ready to go," Mr Starkey said.

"We want people in Geelong to be the beneficiaries of the NDIS funding sooner rather than later because, if we can participate in the launch, the increased funding will come to Geelong years sooner than it would otherwise."

Mrs Foreman is still clinging to hope.

"At least it hasn't been pushed under the carpet and we are going to continue to campaign until it's set in concrete," she said.